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Embracing Life with Ellis Van Creveld Syndrome
Apr 3, 2025
TikTokzachj1232
Why a time goal and why Sub 10? As I said in the video, being able to participate in long course triathlon, even while having Ellis Van Creveld Syndrome (a rare type of dwarfism and skeletal dysplasia) is already such a huge privilege… so what’s the point of a time goal when I’m already doing an endurance sport I shouldn’t be able to do in this body? I believe I am in a rare position to throw down slightly above average times even for an able bodied athlete. I also believe that having the abilit
0:31
Why a time goal and why Sub 10? As I said in the video, being able to participate in long course triathlon, even while having Ellis Van Creveld Syndrome (a rare type of dwarfism and skeletal dysplasia) is already such a huge privilege… so what’s the point of a time goal when I’m already doing an endurance sport I shouldn’t be able to do in this body? I believe I am in a rare position to throw down slightly above average times even for an able bodied athlete. I also believe that having the abilit
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TikTokzachj1232
5 hours of sleep in 3 days is worth it for an event like this! Saw a double amputee, a person with dwarfism and two people with stage 4 terminal cancer all finish this 17 hour race 🤯 #ironman #ironmantri #triathlon #photographer
1:30
5 hours of sleep in 3 days is worth it for an event like this! Saw a double amputee, a person with dwarfism and two people with stage 4 terminal cancer all finish this 17 hour race 🤯 #ironman #ironmantri #triathlon #photographer
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TikTokzachj1232
Now it’s time to double the distance and hopefully not triple the time. Sub 10 full distance at Challenge Roth! . . #triathlon #triathlete #dwarfism #adaptiveathlete #skeletaldysplasia #ellisvancreveldsyndrome #triathlontraining #adaptivesports
0:07
Now it’s time to double the distance and hopefully not triple the time. Sub 10 full distance at Challenge Roth! . . #triathlon #triathlete #dwarfism #adaptiveathlete #skeletaldysplasia #ellisvancreveldsyndrome #triathlontraining #adaptivesports
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